First, I want to thank you all for the sweet condolences your sent on the passing of my good friend. It was not a shock, but still very sad. She had been ill for many years. Her family and friends take comfort in the fact that she is no longer in pain.
Quilt show entry forms
While Anna cleans house downstairs, I'm finally working on my entries for my guild's 2015 quilt show, coming up in a little over a month. Down to the wire, as usual. I wasn't always this way. I used to get everything done well ahead of time. But these days my motto seems to be "Never do anything today that you can put off till tomorrow--or next week--or a year from now."
Christmas quilts finally put to bed
Speaking of which, I finally got my Christmas quilts stored away upstairs this morning. They have been resting on a dining room chair since I undecorated after Christmas.
I'm having a good day today, a phenomenon that does not occur very often anymore. When I was diagnosed 13 years ago with FMS/CFS, I was told that it was not progressive, did not get worse, and in fact sometimes got better or went away. I beg to differ. Mine has actually got worse, especially in the past six years. My flares are more frequent, more severe, and last longer. And of course I have the separate back issues to go along with it, so maybe that's why I do not fit the mold. Do any or you with fibro/cfs find this to be true?
My friend Linda, the one who passed away this week, had the same back problem that I do, degenerative disc disease. She was actually confined to bed for the last ten years of her life. This makes me more and more determined to stay on my feet and keep moving. But I can certainly understand why my friend chose otherwise. Upright is often a very painful position.
OK now, back to the entry forms. Then I'm going to try to get the binding made for the Little Pink Houses quilt. Wish me luck.
This post was migrated from the old blog. To see the comments on the original post, CLICK HERE. To add a new comment, click "Post a Comment", below.
On 04/29/2015, Barbara Anne said ...
I'd say that getting things in order for the quilt show a whole month before the deadline is well ahead of time! Will you enter all of the quilts shown in your first picture in addition to Little Pink Houses?
Cheers that you're feeling so much better today and I hope this is the beginning of weeks and weeks of feeling better, if not endless years of energy and less pain!
Deep fatigue is an unwelcome part of lupus as is arthritis. With lupus, there are flares when everything worsens and times when you're just plain tired before you've accomplished much at all. It's annoying as heck. It's not classified as CFS tho.
Did you know that vaporized medicinal cannabis has been proven to dramatically improve lupus, pain problems, seizures, and many, many other medical issues. This includes the post-traumatic-stress syndrome affecting so many military personnel and others who've experienced or witnessed horrible things. Yet, laws by pinheaded, stupid, or arrogant lawmakers leave these people in utter pain and/or misery and deny all of us access the benefits of plants that can be grown in back yards. This is not about getting high either. Strains of cannabis have different properties and help different problems.
Check it out.
Hugs!
On 04/29/2015, Homebody said ...
When I was diagnosed with fibro and chronic myofacial pain syndrome (and arthritis, etc.), my dear doctor said, "You won't get better - you'll gradually get worse, and I will do everything I can to help you have the best quality of life possible!" That's exactly what she has done, bless her. She gives me verbal "gold stars" whenever I see her. Her encouragement has been very important to my coping with this boring, aggravating, frustrating condition. The changeable weather in spring is a factor in pain and fatigue. When the barometric pressure stops jumping up and down, you will feel better.
On 04/30/2015, Connie Kudsk said ...
I have Ankylosing Spondylitis and Poly Myosytis which are both similar autoimmune diseases. I was diagnosed two years ago and have progressively gotten worse despite all the medication they have put me on. Out of sheer frustration I started juicing and went to a 100% whole food, plant based diet. To my great surprise I am in total remission and feel great. I have even weaned myself off prednisone and hoping to get off all the other drugs soon. I was a total skeptic but I am a total believer now.....I got my life back!! Watch the movie called Fat, Sick and Nearly Dead and give it a try..............
On 05/04/2015, Sharon Penney-Morrison said ...
Yes, Susan I suffer right along with the millions of women who have FM. I have RH too. All of this started in 10 years ago. I am completely off Prednisone, and just take Methotrexate for the RA and 800 mg. of Ibuprofen for body pain from FM. The Stenosis in my lower back will never get better, and I am very cautious about lifting or being on my feet very long. Walking very far to shop is difficult, and I only shop where there are carts.
I keep up around the home, and garden, with help and continue to quilt, and sew.
But, at 70, I have decided it is okay to be slow, to rest when I am tired, and just relax about my health. I make a point to move every 30 minutes doing something, if I have been sitting.
I do what I can.
-----
Posted with Blogsy
